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GETTING HELP


The Truth About Hospice

You don’t have to give up on all medical care.

In Hospice, treatment shifts to getting the best quality of life in the time you have left when no cure is available. The medical care you get is designed to do that.

Currently, Medicare allows 141 Hospices in 40 states to continue curative treatment. This pilot program may be expanded.
You can opt out any time.


If you start Hospice and then decide you want to try something different, you can quit. Simple as that.

At least two doctors have to certify that you have six months or less to live before you can get into Hospice, but things can change. Maybe there is a dramatic change in your condition.
You can still see your regular doctor.

The basic Hospice team consists of a doctor, a nurse, a social worker, a counselor or chaplain, and a volunteer. However, you are in charge of medical decisions made in Hospice. If you want to see your own doctor, you see him/her.
Pain management is designed to maintain quality of life, not sedate you.
Pain medication, like morphine, is designed to relieve anxiety and decrease pain, not knock you out. Patients are actually better able to communicate when medicated than they would be if they were in pain.

By the way, pain medication will not make you die sooner.
You may live longer.

Research shows that Hospice patients typically live longer than patients on standard care.

In one study, they lived about 3 months longer. In another, breast cancer patients lived 69 days longer and gallbladder cancer patents lived 20 days longer.
Hospice can enrich your last days.

Hospice focuses on the person more than the disease, directing attention to things like your legacy, the meaning of life, your expectations of an afterlife, enhancing your relationships with friends and family, and completing your bucket list.

If you’re hooked up to machines that keep you barely alive, you don’t get all that.
Hospice helps the entire family get through a difficult time.
When the patient is hallucinating or delirious, or cannot speak and is trying to communicate wth body language, it’s real helpful to have a Hospice nurse there to interpret what’s happening and show you how to handle it.

Hospice can also provide, up to 5 days at a time, of inpatient respite care in a nursing home or hospice facility so you get a break from caregiving when it’s getting too tough. And you get the break without guilt.
Hospice offers family grief support.

12 month of Grief support is paid for my Medicare.

The passage of time helps us deal with the death of a loved one. Getting meaningful support during the first year typically makes it easier to find the peace and closure we seek.


CACCC PARTNER AGENCIES

All care Home Health and Hospice
Alzheimer’s Association, Northern California & Nevada
American Cancer Society, California Chinese Unit
Asian Americans for Community Involvement
Asian Community Center Nursing Home
Asian Network Pacific Home Care & Asian Network Hospice
California Hospice and Palliative Care Association
California Transplant Donor Network
Center for Healthcare Decisions
Children’s Hospice and Palliative Care Coalition
City of Hope National Medical Center
Coalition for Compassionate Care of California
Companion Hospice
Dharma Drum Mountain Buddhist Association
El Camino Hospital
End-of-Life Nursing Education Consortium
Gentiva Hospice
HealthCare Partners
Hospice By The Bay
Hospice Foundation of America
Hospice and Palliative Nurses Association
Hospice of the Valley, San Jose
Hospice Touch, Culver City
Kaiser Permanente Medical Center
Laguna Honda Hospital and Rehabilitation Center
Light and Salt Association, Texas
Methodist Hospital
Mission Hospice
National Hospice and Palliative Care Organization
New Hope Chinese Cancer Care Foundation
Nurses Plus Hospice
On Lok Lifeways
Palo Alto Medical Foundation
Roze Room Hospice
Sanctuary Hospice
San Francisco General Hospital Palliative Care
Saint Francis Memorial Hospital
Season Hospice & Palliative Care
Self Help for the Elderly
St. Mary's Medical Center
Stanford Geriatric Education Center
Stanford Hospital Palliative Care
Tzu Chi Foundation Northwest Region
University of California, San Francisco
VITAS Innovative Hospice Care
Zen Hospice Project


WHO WE ARE
The Chinese American Coalition for Compassionate Care, the only coalition in the nation devoted to end-of-life concerns in the Chinese community, is an active working coalition of 48 Partner Agencies and over 1,300 individual members.

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©CACCC, 2006