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Monthly Reading

The 2024 July "Monthly Reading" article "安心茶話屋馬來西亞引導員分享" is a collective reflection from the facilitators of the in-person Heart to Heart Cafe held in Malaysia at the end of March, 2024. In the article, they talked about their experience in communicating with the participants and what can be improved in the future.

We started the "Monthly Reading" column on the CACCC website in 2019. In the past two years, we shared many touching stories from our volunteers and our members about facing end-of-life with theirs loved ones or patients. If you have a story you would like to share, please send a short article (English or Chinese) together with a recent picture to info@caccc-usa.org.

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Compassionate Care Weekly Forum
Every Wednesday:10-11AM PT; 1-2PM ET
https://zoom.us/j/84397973750
Zoom Meeting ID: 843 9797 3750, Passcode: 2005

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CACCC PARTNERS

End of Life Discussion

Join us for a conversation with AARP volunteer Lily Liu and Sandy Chen Stokes, Executive Director of the Chinese Coalition for Compassionate Care, and learn how to get started this difficult conversation of the end-of-life care planning.

Tuesday October 29th, 12PM-1PM /Virtual

To sign up for one or more events, scan the QR code or visit
here.
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UC Irvine School of Medicine is looking for Chinese Americans to participate in a research project called DAWN-CAP. The participant has to be a caregiver to a metastatic cancer patient. Click here for the flyer. For more information, please see the flyer, or
Call (213)537-9209 or
Email: dawn@hs.uci.edu
The new California AHCD Simple English/Chinese form is available at the PREPARE website. The form was translated into Chinese with the help of CACCC. Click "Chinese" in the above website to download the form.
CACCC needs your continuous support! Together we are changing the way the Chinese American community facing end-of-life issues. Click here to donate. Thank you so much!
From 9/25/24 to 9/28/24, the Cancer Patient Hospice Care Teacher Training Workshop was held in Beijing. The workshop was sponsored by Project Hope and Beijing Nursing Association and organized by Beking University Cancer Hospital. The founder of CACCC, Mrs. Sandy Chen Stokes and Dr. Gary Lee and Professor Esther Luo from Kaiser Permanente Palliative Care were invited to be the speakers. Click here for more.
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The 7th Hubei Hospice Care Teacher Training Workshop was held from 9/19/24 - 9/23/24. The workshop was jointly organized by Project Hope and Hubei Provincial Nursing Quality Control Center. 35 healthcare professionals from Hubei, Hunan, Yuanan, and Hernan provinces attended the workshop. CACCC Founder Sandy Chen Stokes attended the workshop. Click here for more news.
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Hubei Cancer Hospital (HBCH) hosted a Heart to Heart Cafe Workshop on 9/19/2024. The CACCC Founder Sandy Chen Stokes and Wuhai representative of Project HOPE, Mr. Wei Dong joined the workshop as the guests of honor. 30 members from Hubei Nursing Association attended the meeting. https://mp.weixin.qq.com/s/CkSC5AeSyw3xrm65ainUAg
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Northern California CACCC Volunteer Meeting was held on 8/3/2024 at El Camino Health. About 30 volunteers participated in this event. During the event, the committee leads reported the function and major tasks for their groups. In addition, the celebration activities for the upcoming 20th anniversary in 2025 were discussed.
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NoCal Bliss and Wisdom Buddhism Foundation and CACCC jointly held a workshop for California Advance Health Care Directive. Around 100 people attended this workshop and spent 3 hours in learning this meaningful topic.
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16th Annual Palliative Care Summit was held in Sacramento, California on April 3-4. The founder of CACCC, Sandy Chen Stokes and the board members Yuaner Wu, Simon Chow, and Jiayu Jeng attended the meeting on behave of CACCC. For more information, click here.
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CACCC received the 2023 Award for Excellence in Program Innovation from the Archstone Foundation and The Aging and Public Health Section of The American Public Health Association for its Heart to Heart Cafe Program to facilitate the discussion of end-of-life issues in a safe and comfortable space. Click here more information. The Conversation Project Website: www.theconversationproject.org/
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CACCC Announces Release of NHPCO’s New Chinese American Resource Guide
New Guide to Improve Equity and Increase Access to Hospice and Palliative Care for Chinese Americans
 
In celebration of Asian American and Native Hawaiian/Pacific Islander Heritage Month and in partnership with the National Hospice and Palliative Care Organization (NHPCO), the Chinese American Coalition for Compassionate Care (CACCC) is pleased to announce the release of NHPCO’s new Chinese American Resource Guide, Edition 2022, that replaces a previous resource. The guide, developed by NHPCO’s Diversity Advisory Council, will improve equity and increase access to hospice and palliative care for Chinese Americans. Click here to download the Guide.


Chinese American Resource Guide

UCSF and CACCC announced the completion of the video product "Improving Advance Care Planning for the Chinese American Community". The following are the three videos in English.
CACCC has published an article recently in "American Journal of Hospice and Palliative Medicine®" ,The article describes CACCC's Heart to Heart Cards® and Heart to Heart Cafe®. The authors include Zhimeng Jia, MD, Harvard Medical School and Dana-Farber Cancer Institute, Boston; Sandy Chen Stokes, RN, MSN, Founder of CACCC; Shirley Pan, CACCC Director; Cynthia Pan, MD, NYPQ,Director, Division of Palliative Medicine and Geriatrics, NewYork-Presbyterian Hospital ; Richard E. Leiter, MD, Harvard Medical School and Dana-Farber Cancer Institute, Boston; and Hillary D. Lum, MD, Colorado VA Eastern Colorado Health Care System, Geriatric Research Education and Clinical Center Director.

Following is a short abstract of the article.
Click here to see the full article.
 
“Heart to Heart Cards: A Novel, Culturally Tailored, Community-Based Advance Care Planning Tool for Chinese Americans” 
 
Results:
The 54 HTH Cards were organized into 4 suits (spiritual, physical, financial/legal, and social). Each card displayed a culturally-tailored EOL issue in English and Chinese. Play styles included one-on-one and group formats (ie. HTH Café). CACCC volunteers conducted 316 HTH Cafés for 2,267 Chinese American adults. The top priority was “If I’m going to die anyway, I don’t want to be kept alive by machines.” Participants thought the session was pleasant and expressed intent to complete advance directives (86.5%).

Conclusion:
HTH Cards represents the first, theory-driven, culturally-tailored ACP tool for Chinese Americans. More research is needed to establish its impact on ACP conversations and outcomes.
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查詢安寧緩和療護服務機構
查詢您所在地區的安寧緩和療護服務機構,可在以下網站查詢,也可以詢問您的保險單位。 美華慈心不做推薦。
1. National Hospice and Palliative Care Organization
https://www.nhpco.org/find-a-care-provider/
2. Get Palliative Care
https://getpalliativecare.org/howtoget/find-a-palliative-care-team/

如何挑選安寧療護服務
請參考此網站。
https://hospicefoundation.org/End-of-Life-Support-and-Resources/Coping-with-Terminal-Illness/How-to-Choose
MORE NEWS
    • In June 2019, the founder of CACCC, Ms. Sandy Chen Stokes, the board member Dr. Gary Lee and volunteer Cheryl Chi visited Wuhan, China to help with the growth and development of palliative and hospice care among Chinese health care professionals. The trip was sponsored by Project HOPE. During their visit, they conducted a four day training class to a group of nurses from the major hospitals in Wuhan, and attended Oncology Nursing Committee annual meeting. Dr. Lee shared wrote an article to share his experience with all the CACCC friends.

    • On behalf of the staffs, the volunteers and all the patients and family members who were or will be benefited by our services, the board of directors of CACCC would like to thank and congratulate the great success of the Tsai Chi Charity Concert organized by Chinese Cancer Memorial Foundation (CCMF). As one of the beneficiary organizations of the concert, CACCC, together with the other four organizations, received $125,000 donation out of a total of $627,000 net profit. CACCC is deeply grateful for the generosity of all the donors and will strive to serve the Chinese community with end-of-life need.


    • The founder of CACCC, Ms. Sandy Chen Stokes is invited to serve as a panelist in "Improving Access to and Equity of Care for People with Serious Illness: A Workshop" organized by The National Academies of Science, Engineering and Medicine on 4/4 at Washington DC. For more detail, please click here. Ms. Sandy Chen Stokes's talk can be viewed here.

    • There is a new end-of-life conversation video posted on AARP AAPI Community Facebook. In this video, Melinda Leong Capozzi (CACCC Board Member) and her mother played Heart to Heart® Cards and talked about end-of-life preferences. Another five AARP videos will be previewing in the next few weeks. Please share the video with your friends.




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